Comments:

LA - 2006-07-08 18:58:23
Hey, Tootsie! Glad to hear you're mending! It's good your doc gives you the straight poop about pain meds. My Rasta method of managing my MS is much the same. Enough to function, nary a buzz. Hope you can do some beading soon. Nothing like making something beautiful to put a shine on one's day. ~LA
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cat - 2006-07-08 19:48:40
Most people have no clue how to react to illness so they just disappear--or stand by and pass judgement. Maybe your doc or local hosp. can recommend a local pain management group? So you could interact with people who understand your situation. I'm sorry you still have to go through the pain of changing your packings/bandages daily. :( It is *SO* frustrating not to be able to DO anything...I wish I had some piece of sage advice for sailing through this like a leaf on a pond surface. My family and therapist always tell me to try and remember that exhaustions/flares/etc. are the body's way of saying "Hey girlfriend, slow down and take care of yourself!" So if that helps...if not, just ignore me. :)
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Holly - 2006-07-08 20:11:12
((hugs)) hope you heal soon!! It sure doesn't sound like much fun what you are going thru. I'll be thinking of you.
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